Current Events

2nd Annual Scramble for Scarlett Golf Tournament & Dinner Reception

August 24th, 2019 – Hickory Heights Golf Club – Bridgeville, PA

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Scarlett’s Sunshine Act

Scarlett’s Sunshine on Sudden Unexpected Death Act is legislation introduced by U.S. Senators Bob Casey (D-PA), Johnny Isakson (R-GA), Sherrod Brown (D-OH), and U.S. Representatives Gwen Moore (WI-04), Tom Cole (OK-04) and Jaime Herrera Beutler (WA-03) to combat Sudden Unexplained Death in Childhood (SUDC) and Sudden Unexpected Infant Death (SUID). The legislation was introduced in honor of Scarlett Pauley in September of 2018. Scarlett’s Sunshine Act (H.R. 6931/ S 3521) would strengthen existing efforts to better understand SUID and SUDC, facilitate data collection and analysis to improve prevention efforts, and support children and families.

 

The bill:

  • Directs CDC to revise standardized case reporting forms for SUID and SUDC, and authorizes grants to states and local agencies to improve SUID/SUDC case reporting form completion and autopsies.

  • Authorizes a CDC-commissioned study to advise on the appropriateness of genetic analyses and best practices for testing in these cases.

  • Provides training grants and materials for death scene investigators. Authorizes $10 million per year in new federal funding for these activities.

  • Provides HRSA grants to state to enable 100% review of all infant and child deaths, and support data infrastructure so the data can inform prevention experts and clinical care. Authorizes $15.25 million per year for these activities.

  • Creates new HRSA grants for outreach efforts to educate families on safer-sleep practices for infants and provide low- or reduced-cost products conducive to safer sleep recommendations from national organizations. Authorizes $24 million over 5 years for these activities.

  • Finally, the bill would require annual reports to the Senate HELP and House E&C Committees to include the absolute number and incidence of SUID/SUDC, actions undertaken, and any new recommendations.

 
 

 Past Events

 
 
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Be the Sunshine for Scarlett Community 

In the wake of losing Scarlett, Stephanie and Ryan asked their community to spread love and kindness in Scarlett’s memory. This simple request turned into a movement, with local friends and family, as well as strangers thousands of miles away, performing random acts of kindness, or spreading “sunshine” in honor of Scarlett.

We would love for you to join the Be the Sunshine Community! Please be sure to print a Be the Sunshine card and help us spread kindness in Scarlett’s memory!

And please share what you choose to do with the rest of the Be the Sunshine community on our Be the Sunshine Facebook page!